Will There be Cake?

I have Lyme. I’d like to not have it anymore. I also just want cake.

Cycle 8, You Were the Worst.

Finishing the 12 days that was Cycle 8 in my Lyme Disease Treatment was like coming out of a coma of 14 more wasted days of my existence. Only this coma I was conscious enough to realize I have never felt worse in my entire life. Well, except that one time last summer where I visited the ER three times in one week because I was sure I was dying. But other than that, Cycle 8, you were the worst. Week one started out nice enough with infusions just Mon, Wed, and Fri night. However, by Friday nothing was working right in my body. Like seriously, nothing. It seemed all brain communication to the rest of my body was severed and movement, vision, digestion, breathing, speaking, everything… worked soooo slooooow. This, of course, made detoxing absolutely impossible. Then came hell week. Sun-Thur, four infusions a day (that’s 20 strong antibiotic infusions in five days), ending with the absolutely nightmare of a drug Tigecycline each night. Basically it was “let’s just pump Tara full of drugs as everything that would get rid of them shuts down week”. The drugs and dead bacteria guts with their toxins of decay … all that goodness, swimming around my body, impairing brain functioning for days. It felt like the worst acid trip and stomach flu combined. My sweet father and husband did everything for me from bringing me water 15 times a day to coaching me to breath during a limbic seizure to making me detox foot baths and reminding me I only had three more days to go, then two more… then one more. I truly couldn’t go through this without their support. I know I will credit Dr. J for saving my life (and because I like a bit of sass I’ll later say he tortured me as he did it), but I will always credit my husband and parents for truly getting me through each horrible moment and keeping me going so that there was a life TO be saved.

… Wait, I feel like I’m not done complaining. Let’s go back to that. The nausea. Let’s talk about the nausea, briefly, if I can. If there was a cliff I’d have dragged myself along the dirt, acquiring dust as it stuck to my drooling face, to its edges and rolled off. I know I have said that many times during a bout of stomach flu, but this time I actually mean it. This time trumped all. I felt nausea in every fiber of my being. It kept me up all night. It tortured me all day. No amounts of Zofran, Promethazine, or Marinol (I am taking cancer strength nausea drugs people) could keep it in check. I had to force-feed through it, watch Carl’s Jr. commercials through it, smell dinner cooking through it, exist through it. I was forced to drug myself up and try to sleep during the day, waking  for infusions and meals and a seizure or two, face constantly in the couch probably making all sorts of suffering-type noises. Just know, it was awful. Killing Borrelia spirochetes is an awful, awful, barbaric process. But if I want to live, really LIVE again someday, I have to.

*Gets on her pretend soapbox* I truly hope that future medical research can find more gentle and tolerable ways to eliminate this bacteria from one’s body, brain, and nervous system. It’s just crazy that constant high doses of Ativan, Klonopin, Neurontin, Anti-seizures, and anti-nauseaus still can’t keep me comfortable through this. That alone is a testament to how much suffering is involved in ripping out a deeply seated “Borrelia and friends” infection. Where is the new research!? Where is the advancing medical discoveries alleviating Lyme patients everywhere?! Shame on you all! I believe so many people remain ill because they just can’t tolerate adequate treatment, are deathly afraid to get aggressive with it, and opt instead to spend the rest of their lives trying to just ease their symptoms for as long as they can. It’s sadness. But I understand. I really do.

However, back to me. I have survived Cycle 8.

Aw, one little smiley face on Tuesday. One last cute, naive little smiley face.


Cycle 8

Advertisements

One comment on “Cycle 8, You Were the Worst.

  1. Bed
    January 24, 2016

    Well said, “Where is the new research!? Where is the advancing medical discoveries alleviating Lyme patients everywhere?! Shame on you all!”

    Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Follow Will There be Cake? on WordPress.com

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 264 other followers

Categories

Instagram? Hit. Me. Up.

Back, to realityyy 🎶 -

#theneighbourhood #slc #inversion #saltlakecity Last day with the past... #backtothecitytoday #bloomingtonpetroglyphpark #stgeorge #utahisrad #werutah Who’s mans is this? Oh, mine. 
#fromlastnight #desertsunset #stgeorge #utah From 200 BC to 1250 AD Anasazi Indians scribbled bunches of stuff on rock in a little slot canyon in #southernutah and more than 760 years later I came along and thought it was pretty kewl. -
#petroglyphs #snowcanyon #utahisrad #utah #hikeutah Nice rack. 🦌
-

#whenthesituationcallsforit #pleasedontfeedtheanimals #stgeorge #evenstevens “Step into my backyard... I’ve been waiting for you 😏 “
-
Actual quote, “Dustin give me my phone” 🙃 -
#snowcanyon #utahisrad #beautahful #petrifieddunes I made one measly official goal for 2018. Except it’s not measly. It’s mealsy. 😄😄😄... (I’ll show myself out). -
But seriously. As I’ve been clawing my way out of the dark pit that is Lyme, I’ve tried numerous diets. I’ve been low-carb for years. I tried keto. I tried low-fruit. I tried extremely high fat. I’ve gone no dairy. I’ve been no gluten for-EVER. I did the low-histamine diet. I ended things with sugar. I’ve switched to grass-fed meats. Guys, I’ve tried it all. Some helped, some are still essential, some made no impact, some made me feel worse, one ended up being a nightmare (keto, I’m looking at you). -
I know diet is a huge piece of my puzzle and I know I’m hugely affected by the food I eat. Soooo, on Dec 31st I did the only thing left and took the plunge and went plant-based. Overnight. Really I feel like I’ve been prepping for this my whole life... getting there in stages. I was always too afraid to attempt, thinking it would be extremely hard to not just follow, but to do right so you don’t become deficient in anything. I researched it for a week prior and the transition has actually been so easy for me. I’m almost two weeks in with zero dairy, gluten, sugar, processed food, or meat (with the exception of one serving of salmon at a restaurant). I already feel a difference (more energy, far less food reactions, better digestion, better sleep, and less heart pounding... hallelujah). There was only one time last week I thought “dang, I could eat some ribs right now...” but then I went to bed and forgot about it. It hasn’t been hard at all other than slightly more food prep. -

Sooo, so far so good. My goal is three months and then reassess. I will report any lasting successes in symptom reduction. I refuse to become an annoying vegan and I also think life shouldn’t be so rigid that I will ever say “never”. There IS ice cream and ribs in my future. But for now, me and my juicer are BFFs and plz don’t disturb my sprout garden. Here’s to going green! 🌱🌿🍏🥦 -
Lastly, FACT: these tacos were bomb.com. ✌🏻 -
-
-
#Lyme #lymetreatment #plantbased #plantbaseddiet #chronicillness This weekend: St George, UT for some 🌴🌞
In a few weeks: Grand Tetons for some ❄️🏂🏔
In a month: Washington DC for 💊👨🏻‍⚕️ Busy times ahead and I’m not mad about it. Also here is a random pic I took recently in the mountains. 
#girlneedssomeexcitementinherlife #bigcottonwoodcanyon #snowbirdresort #alta #utahisrad #slc Counting down the seconds until he explodes with rabid, lunatic barking... portrait of a Sunday. 
#sunday #doggotthingstogaurd #peaceandquietormayhem #portraitmode

Twitter? Youbetcha.

%d bloggers like this: