Will There be Cake?

I have Lyme. I’d like to not have it anymore. I also just want cake.

Coartem, What is the Deal?

Just finished my fourth round of Coartem. What is Coartem? Well, if we want to get technical and if you feel like reading some fancy (but really not that fancy) descriptive jargon, Wikipedia describes Coartem as the following:

“The combination artemether/lumefantrine (trade names Coartem and Riamet, Falcynate-LF) is a fixed-dose combination artemisinin-based combination therapy (ACT) indicated for the treatment of acute uncomplicated Plasmodium falciparum malaria.  The individual drugs were both initially developed in China. Artemether is one of the semi-synthetic derivatives of artemisinin, and lumefantrine (also known as benflumetol and CGP 56695 during development) is purely synthetic. The combination is an effective and well-tolerated malaria treatment, providing high cure rates even in areas of multi-drug resistance.”

Personally, I just describe Coartem as $124 out-of-pocket for 24 yellow pills that cause a food aversion like whoah.

But the purpose… I don’t have Malaria. I have Babesia. This wonderful little protozoa is just another infection I likely acquired with my Lyme Disease. Perhaps at the same time, perhaps from a separate bite. It doesn’t matter, I have the stupid thing. It is stubborn. It doesn’t want to die. The standard treatment for chronic forms of babesiosis are anti-malarials paired with an antibiotic to prevent resistance, usually Zithromax, Clindamycin, or Septra. I’ve been on all three. I’ve been on Atovaquone for my anti-malarial since May.

Mepron, quite possibly the worst tasting medicine out there, and costing over a grand per bottle at that.

Atovaquone, quite possibly the worst tasting medicine out there, at over a grand per bottle at that.

I’ve also been on Arteminisin since May. This is a herb that has been found to nab the little suckers as well.

Arteminisin. Six pills, two times a day. Heaven be with you, poor liver.

Arteminisin. Six pills, two times a day. Heaven be with you, poor liver.

Around July we introduced this Coartem stuff as a “test of cure” for Babesia. If I got sick on Coartem, I still had it. My symptoms on Coartem were always too vague to really distinguish if I was still sick with Babesia or if it was just my good ‘ole Lyme doin it’s thing.

Me and my first dose of Coartem, posted on Facebook. Little did I know, four rounds later, I'd still be on the little yellow pills. Me and my first dose of Coartem, posted on Facebook July '13. Little did I know, four rounds later, I'd still be on the little yellow pills...

Me and my first dose of Coartem, posted on Facebook. Little did I know, four rounds later, I’d still be on the little yellow pills.

But, THIS time, these past three days, were awful. I was sick. My heart pounded the entire three-day course. I felt tippy and dizzy. My body literally forgot how to regulate its own temperature and I went up and down from cold to hot to shivering to sweating for three straight days. I was fatigued. Like, I really want that glass of water on the table two feet from me but I will collapse if I try to grab it fatigued. My kidneys ached. My eyes hurt. My left ear kept doing funny things with my hearing. I twitched a lot. Random parts of my body would have flares of pain and then disappear. Is this the Lyme? Or was Babesia just like, chilling out in some biofilm somewhere all this time and now that we’re blasting up some biofilm it’s all like naked and out in the open, ready for Coartem to zap it?

Months ago, nay, a year ago, I started telling everyone I’m totally done with trying to explain or predict this disease. Why I’m still postulating things today seems frivolous as I still can’t ever figure it out. I write it all down on a piece of paper, convinced I am going to be so prepared at my next doctor appointment and we’ll finally get to the bottom of all of this weirdness. Then, classic Tara, can’t pull my brain together to even mention half of the stuff that is plainly written on a piece of paper in front of me during my appointment.

I give up. I am just going to take whatever drugs he tells me to and stop trying to explain every ensuing result.

That is a lie.

Advertisements

3 comments on “Coartem, What is the Deal?

  1. Bec
    January 24, 2016

    A note specifically to the humor in this post: Lol

    Liked by 1 person

  2. Marc
    November 5, 2015

    Just curious how you are doing now with the babesia? I’ve been sick for 10 years and have been doing coartem for a few days a month for a few months. I know your symptoms well. I can be sitting still and boom I start to sweat with reckless abandon even though I’m not doing anything, just sitting trying to get better. How is the coartem treating you now? Any breakthrough on the babesia? Thanks, Marc

    Like

    • tarathackeray
      November 5, 2015

      Marc, I finished my babesia treatment earlier this year and so far so good! I’ve been put back on Daraprim which targets protomyxoa among other things and I tend to sweat a little again since being back on it. But when I’m not taking any meds I am not bothered by it. Just keep going! It gets better 🙂

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Information

This entry was posted on October 16, 2014 by in Babesia, Lyme Disease, Treatment Updates and tagged , , , .
Follow Will There be Cake? on WordPress.com

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 233 other followers

Categories

Instagram? Hit. Me. Up.

Just a little throwback of us four-ish years ago ❤️ #dctemple #dc #ldstemple I scoured my pictures looking for one of my dad today, and every one was either of him performing some sort of service for one of us kids, or looking at rocks and plants (so my dad). I found this one and it just touched my heart. Not only do I reflect on how much my dad means to me this time of year, but I also reflect on my brother who passed on just days before Father's Day in 2009. This picture is of the two of them - dad has helped all of us kids over the "rocks" in our lives, but this picture especially melts me. 
So thankful for Dad ❤️👴🏼 I know I keep posting puppers. Deal with it. Because my sister and I took her dog to the mall the other day and his little Macy's escalator butt was too cute not to share. 
Also swimsuit shopping was a fail. Per usual. 
#doggodoesanescalate #swimsuitsweremadeforonlymodels #imightbethekidwhowearsatshirtinthepool Jeans are a borderline human rights violation after you've spent the last four years in leggings and sweats. 
#adjustingtonormalpantsishard #howdoyouwatchtvinjeanslikehow #lymelife #chronicillness Sammy's first selfie. What has social media done to my child 🙆🏻🤦🏻‍♀️ #100likesandmomfeedsmesteak Perched. 
#thatonetimeinzion #zionnationalpark #utahisrad Posting as a pep talk to help me not choose ice cream for breakfast. 
#sohardwhenyougotsugarfreeinthefreezer Even smushfaces think about life. 
#perksofpuppersitting #slc #saltlakecity #slccapitol #sunsets #frenchie Dustin's photography strategy is rapid firing a million shots in the hopes I will like one instead of using any artistic liberties. This is one from about 8 of me putting a hat on backwards after I posed for an actual shot, so I promise I wasn't trying to look cool. 
But gall dang. Too cool for school. 😎

#unknowinglywerkinit #livingroomhike #slc #saltlakecity #utahisrad

Twitter? Youbetcha.

%d bloggers like this: