Will There be Cake?

I have Lyme. I’d like to not have it anymore. I also just want cake.

Marry Me Marinol

If you’ve read any part of this blog by now you’ve probably gotten a hint of my religiosity. Not that I am going to show up at your door with pamphlets claiming if you don’t listen to me your soul will be damned. I am not one to shove my beliefs down anyone’s throat. I don’t even think all of you will be damned. However, my “About Me” page clearly states that I am a Mormon. Anyone familiar with Mormonism probably knows we don’t party – in the modern sense. We have our own parties with Sprite and Dr. Pepper and lots and lots of sugar. We enjoy them just fine. Our naivety over the sensations and thrills that various substances on our no-no list can produce keeps us fairly happy. Us folks like to keep a clear head. The majority of us have never touched a beer or cigarette, let alone a cannabis product. However, today my little Mormon self is going to sing from the hills about the little THC pill that makes life worth living for me in the middle of my intense, IV antibiotic cycles.

I am about to start Cycle 9 of my IV therapy for Lyme Disease. I barely survived Cycle 8 this month. Yet, I’ve got my PICC line prepped and come Monday, I’m ready to go. And still, there is this subtle, diffused feeling of hesitancy in my soul today. Do you want to know why? It’s because I need to buy more Marinol.

Neurological disarray pretty much feels like the worst thing possible. It’s enough to get you really considering where you should buy your burial plot, possibly even pricing it out. When I was first put on Ativan I was like, “ooooh, I like this pill”. When I took my first Klonopin I was like, “Um, guys, I feel really, really good”, with a tear streaming down my cheek. I quickly began to affectionately call it “K” and I knew we would come together each night before bed and life would never be the same. But, as most benzos do… those lovely, lovely, in-a-warm-river-of-happy full body sensations dissipate all too fast.

Then came Marinol.

Don't. Even. Care.

Don’t even care right now. Where are the potato chips.

One time I took Marinol simultaneously with my Ativan, Neurontin, and my anti-seizure med Trileptal. Within minutes I was in heaven, being drawn to my bed by some being of love where I lay as the bed turned in to waves and the ceiling turned in to waves and for a minute I was slightly concerned but it felt all to wonderful to care… every object in my room became something capable of love and it all loved me. I floated in these waves as I fell into the best nap of my life. This was a pleasant mistake on my part, but just the same, I politely told “K” that I had found a new best friend.

Marinol doesn’t make everyone high. My doctor warned me that only a few of his patients had reported back with hallucinogenic reactions just so I wouldn’t freak out if I would be one of them. No hallucinations (maybe one), however I found Marinol to trump my benzos and bring me to a level of Marley’s greatest hits that I have never experienced before. I’m not going to sit here and get in to any kind of marijuana legalization debate. I’m strictly talking about legal pharmaceuticals and leaving it at that. A legal pharmaceutical that melts away the majority of my Lyme symptoms fast. And maybe I am only making a big deal out of this because for me, just feeling normal is a sensation so long gone that when I achieve it, when I achieve that wonderful normal, I look around simply amazed and asking myself repeatedly, “am I high?”.

I am not sure how I feel about having to eventually part ways with my Marinol. On one hand, it will mean the worst of my antibiotic treatment is over and that will be a really, really good thing. On the other, well, no more Marinol. I’ve kept a fairly straight edge so right now, this is my one little “substance” that I get away with. For the sake of medicinal effects, it truly does keep me off the bathroom floor and eating food while napalming my Lyme. But for the sake of the bake… I think my husband is on to me…

Tara… are you trying to get high on your medications?

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4 comments on “Marry Me Marinol

  1. Lindsay Phillips
    October 24, 2016

    Is there a way for me to read your blog? It says password protected for me. I am currently on IV treatment for Lyme. I hope you are doing well!

    Like

    • tarathackeray
      October 24, 2016

      If you are trying to read my protocol I can not publish that per my doctor’s request. Please message me through my contact me tab if you would like any information on that. Otherwise I’m not sure why you couldn’t see any other pages?

      Like

  2. Bec
    January 24, 2016

    🙂

    Like

  3. chronically undiagnosed
    October 24, 2014

    This is beautifully written. I was especially struck by your comment, “And maybe I am only making a big deal out of this because for me, just feeling normal is a sensation so long gone that when I achieve it, when I achieve that wonderful normal, I look around simply amazed and asking myself repeatedly, ‘am I high?’.” This is a concept that I think only those with chronic illness can understand. I completely understand.

    Liked by 2 people

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This entry was posted on October 24, 2014 by in Humor, Lyme Disease, Lyme Treatment, Marinol and tagged , , , .
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Just a little throwback of us four-ish years ago ❤️ #dctemple #dc #ldstemple I scoured my pictures looking for one of my dad today, and every one was either of him performing some sort of service for one of us kids, or looking at rocks and plants (so my dad). I found this one and it just touched my heart. Not only do I reflect on how much my dad means to me this time of year, but I also reflect on my brother who passed on just days before Father's Day in 2009. This picture is of the two of them - dad has helped all of us kids over the "rocks" in our lives, but this picture especially melts me. 
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