Will There be Cake?

I have Lyme. I’d like to not have it anymore. I also just want cake.

Love The One You’re With (hint, it’s you)

So I really like the internet most days. People are so funny. Millennials are funny. The humorous content they create and share online centers on how much they don’t have it all together, how adulting is hard, how getting out of bed is hard, how managing a bank account is beyond the scope of their will, socializing is the biggest chore of life, and just how little responsibility their mental health can handle. I find this simultaneously humorous and terrifying for future implications. But that aside, today I want to focus on one meme that has come out of this generation recently that I truly love. It’s my favorite. “He’s doing his best okay.”





And on and on. 


When applied to circumstances of utter absurdity it is amusing. When applied to my life of Lyme & Co, especially when the sum accomplishments of many of my days resemble an absolutely laughable attempt at normalcy, perhaps even amounting to a negative number… can it get anymore relatable?

When I got sick and it became apparent this was not going away, I descended into this strong desire to leave my body. I fantasized about it. I would eye the old guy meandering down the soup isle at the grocery store and desperately wish I could trade bodies even with him. Enmity grew between me and my body and flourished for a long time. As as I began to improve and my symptoms would begin to ebb and flow as opposed to just constant, my body wasn’t despised as much in my mind but still remained as this thing that I couldn’t trust, would frequently let me down or drag me into setbacks, and that I still wished I could escape from. I think we all understand these feelings.

Story time.

Recently I underwent a brain MRI to just make sure nothing has changed since my last in 2013. I have no problems with MRIs other than the sound. I change into the supes comfy, 15 sizes too big scrubs and empty my bladder. I am ushered into the cool, dark room with the whooshing sounds made by an MRI machine on idle. I lay on the little padded human conveyor belt bed, get the cage put around my head, and then the attendant leaves the room. As soon as my bed begins to move me into the machine an unexpected rush of heat hits my brain and I feel like I’m going to pass out. And contrary to every previous MRI experience I’ve had, my body begins to utterly, completely, panic.

What. On earth.

I have no history of having problems with MRIs. Or CTs. I’m not claustrophobic in these conditions. I actually find laying in a cool, dark room to be peaceful. I like enclosed spaces. I feel safe and relaxed under weighted blankets. Story time within a story time – I even used to drag my pillow and blankets into my closet and sleep. So clearly, this MRI panic attack made absolutely no sense. But because I am also awkward and didn’t want to screw up the whole scan, let alone hit my panic button and sheepishly be like “um, please stop and also please don’t look me in the eye when you come back”, I bottled my panic attack and just let it internally rage while I laid there pretending I wasn’t actively in the dying process. Throughout that MRI I frequently thought how awkward it was going to be when the attendant came back and conveyor belted me out of the tube only to find that I had sadly passed. I imagined all of the blank faces when they were going to have to go out to the waiting room and inform D that his wife had unfortunately not made it through this incredibly benign procedure in which I am only required to lay still. This was it. After all of the ER visits, picc lines, IVs, herxheimer reactions strong enough to have me fantasizing about running in front of a bus, if I was capable of running… and THIS was how it ends. Of course it would be. Of course my body would do this to me as the ultimate final line in the modern tragedy that was my story… make ME the victim of something so mirroring my own sense of dark humor.

So severe was this panic attack that I genuinely think it ranks in the top ten most difficult acute experiences of my illness. There was no button I could press to drop a lorazepam into my mouth.

As I was summoning everything within my power not to scream and fah-reak out, I was also cursing my body. I was thinking about how much torment it has put me through, how it’s let me down, and how it’s held me back from so much. I mean, really, I was NOT being kind to it at all. This self-cursing would only be interrupted by asking God to spare my life (or to sing Jesus Wants Me for a Sunbeam in my head), of course, because my body was going to kill me and as I mentioned, I did not want to go out in an MRI tube to bad dubstep sounds… like the ultimate one-upper of misfortune my body seems to be. And then, suddenly, something that changed my perspective instantly. A simultaneous chastisement clothed in the most loving and nurturing of tones. A voice came into my mind that momentarily silenced all of the chaos.

“She’s doing her best”.

Man. I melted. I completely melted. I had been viewing my body wrong this whole time. Thank you, God, for sticking up for this lump of flesh that I was being so mean to. Lyme was happening to us, not just me. For over four years now my body has been enduring this hell as well. She’s been fighting and doing the best with what she knows how. She’s countering as best as she knows how. She was given a certain genetic code with instructions for how to respond to this mess and not every line is perfect, but bless her she’s working with what she got. She gets tired, too. She has been that trusty car that doesn’t look like much, shows her wear, but gosh darnit she still carries you around even if her muffler is loud, she’s getting rusty, stalls a lot, and you’re embarrassed to be seen in her.  Her only job is to carry you throughout life so you can experience mortality together and she’s giving it her all for you. Sometimes she’s the big yellow duck in the harbor doing nothing but staying afloat. Sometimes she’s the bear banging clumsily on the piano because pianos are meant to be played and she knows how badly you want to make music. She’s trying to give you good moments while also trying to save you both.

In that second, like a powerful rush equal to the initial heat of my panic attack, I felt such a profound gratitude to my body for everything she’s given me. I felt love for her and I felt this overwhelming desire to be kind to her and appreciate her efforts. To treat her like the gift she is.

Maybe I’m the only one who needed to realize this. But I’m sharing anyways. It really impacted me. Me and my body are in this together. We’re fellow sufferers. We are both, simply, doing our best.



Processed with VSCO with a5 preset

Me and the ole’ bod… giving her some fresh air and nature. Because we’re bff’s now.



11 comments on “Love The One You’re With (hint, it’s you)

  1. Luanne T Taylor
    December 6, 2017

    I really love this! Tara, you really hit the nail on the head to love and appreciate one’s body. Nurture and care.
    We have communicated before. My daughter has Lyme. Thank you for giving us a life line of understanding of what so many people do not understand. It is so validating and uplifting. You have helped me understand my daughter, Katie, so much more. Thank you, thank you, from the bottom of my heart.
    BTW, Katie is now being treated at the Jemsek Clinic and is in her second month of treatment. I am trying to integrate your suggestions as far as keeping a calendar and explicit and clear instructions on meds, supplements, IV schedule and a journal. Any suggestions of a good way to have it online so it is readily available? Also, on her bad days she sleeps through everything, even the nurse who comes in once a week to access her port. As her treatments go forward, will she typically need someone with her? Her husband works and comes home for lunch to check on her but sometimes it doesn’t seem to be enough. I know you have really been through it, any guidance? We are 4 hours away. I appreciate any suggestions.


    • tarathackeray
      December 6, 2017

      I never kept anything online, just on a printable calendar. But I think google has calendars you can share online with family members who are helping in care.

      Knowing if she will need further help is only something time can tell, but I would say it’s best to plan for it now should she need it. I myself really needed someone home with me all day for the first year. Wishing your family the best 💚


  2. Wendy Kuhn
    November 23, 2017


    I just discovered your blog while searching for lyme seizures. That post was so informative and helped me feel like I am not so alone in having these wild things happen to my body. At least I can name them and explain them now! This post was great as well, brought me to tears. So often I curse my body, am mad at it for not healing faster, am mad that it fails me so often when I need it to be strong. But we can’t do that – we have to have compassion for ourselves, for our bodies. We are in this together. She is doing the best she can.

    I go see a new doctor in St. Louis on Monday. I’m optimistic, but not too much so.


    Liked by 1 person

    • tarathackeray
      November 23, 2017

      Wendy, thanks so much. I will be thinking of you on Monday and I hope it goes much better than you are expecting!


  3. communikatesite
    November 20, 2017

    Hi Sara
    My daughter Zoe and are are in DCu til early March next year. She is doing IV with the good doctor. We would love to meet up with you if you have a visit here planned during that time. We have come from Australia.
    It would be lovely if circumstances allowed.
    Stay strong


  4. Ted Bryan
    October 29, 2017

    Dear Tara, you are not alone in needing to understand the fact that you are doing your best, again you’ve left me in tears realizing we have so much to learn about ourselves and others. Doing the best we can with what we’ve been given is a very hard lesson to learn because so often it feels like our best is not quite good enough. I try my best everyday but never looked at things as you have described, it’s always so nice to have other’s opinions and experiences that seem so easy yet I have never looked at things in the way you did in that moment. I cannot thank you enough for writing again and how nice it is to read your stories, they always make me feel like I’m not alone and that there are others just like me struggling with the same things and your writings always seem to make me feel better and give a new perspective that I haven’t seen or thought of, please know that we pray for you everyday and how much I enjoy your stories good and bad because they force me to look at things from your eyes and it is a tremendous blessing for me to be lucky enough to call you a friend, please continue to write and or email me to let me know you are ok, I am so grateful for you to have included me into your world and teach me lessons on faith hope and everything else you have taught me. God bless you Tara.
    I cannot thank you enough for all you’ve done and continue to do for me.

    Liked by 1 person

    • tarathackeray
      October 29, 2017

      So kind as always Ted. I appreciate every word. Our best isn’t measured in accomplishment but effort. I think we all are trophy winners when it comes to effort!


      • Ted bryan
        October 30, 2017

        I think so too, it’s just nice to hear from your point of view , sometimes it takes another perspective to help us along the way but if effort is winning then we are all winners. Thank you for writing!!

        Liked by 1 person

  5. LymieLovesJesus
    October 28, 2017

    Reblogged this on Lyme and a Coconut and commented:
    On a day when I’m doing my best and knowing that is OK….she has to come out with this gem. ❤

    Liked by 1 person

  6. Kat
    October 28, 2017

    Thank you 💚

    Liked by 1 person

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